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Ehlers-Danlos Syndrome

“I’m Ally, a 28 year old disabled human. I have a plethora of physical & mental illnesses with Ehlers-Danlos Syndrome being my main illness. EDS is a connective tissue disease, causing the body to produce faulty collagen. This affects the entire body -skin, organs, autonomic nervous system... just everything. EDS has caused me to develop a form of Dysautonomia called POTS(postural orthostatic tachycardia syndrome) & that’s why I have a port. I receive Saline infusions five times a week & I am on in home care with nurses coming to see me weekly. Needless to say, EDS really likes to mess with your body. All of my main ailments are considered rare diseases, & that is why raising awareness is so important. I chose the Ehlers-Danlos Aware Causes necklace because not only is it beautiful, but it is a conversation starter.. many people have pointed to my necklace wondering what it’s for, so I’ve been able to raise awareness just by wearing it! It really means a lot to me; awareness that is. Awareness is so important. Awareness helps to aide in educating the public & our medical professionals -thus increasing better care. Awareness can raise funds for research since there still is no cure for EDS. Awareness brings about a community of understanding & I am proud to wear this necklace every day.” @ally__strong

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