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Ehlers-Danlos Syndome

“My dad is from bolivia- they don’t have health care like they do here and have certainly never dealt with a condition like ehlers danlos syndrome. So I was the first in my family to get diagnosed 17 years after i first started showing symptoms, this meant that my dad also had a word for his condition. I think a lot of EDS representation doesn’t show the different intersections- me being latina affects both my care and my history with eds. i once had an er doctor tell me that i couldn’t have EDS because I wasn’t white and he then proceeded to try and treat me for something else, something he felt that a latina could have. I constantly have people tell me my EDS is from my mothers side - because she’s white - and don’t believe me when I correct them. EDS has challenged and affected me in so many ways but the challenge of my ethnicity on top of my disability has easily been the hardest.” @living.being.sick

 

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