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Heart Conditions and Diseases

“My name is Carlie and I have a one year old daughter named Julia (better known as juju). Julia was born with several rare heart conditions including hypo plastic right heart syndrome, VSD, transposition of the great arteries and a straddling tricuspid valve. She has had four Open heart surgeries and is now waiting for a heart transplant. Not only is Julia a heart warrior, but she’s also a stroke survivor! She suffered a massive stroke due to a blood clot that traveled to her brain during one of her open heart surgeries. She has spent her whole life in the hospital and is inspiring others to live their best lives! This is who we wear our necklaces for.” @carliefrullo

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