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Kidney Disease Stories

"Hi! My name is Marquila Turner and I’m from Dallas, Texas. 9 years ago December 30, 2009 I gave birth to my 1st son Eric Jr. He lived for an hour. During my pregnancy his sonograms showed he had an enlarged heart, enlarged kidneys, no abdominal fluid that caused his lungs to not fully developed. I left the hospital with little to no explanation. In August 2017 I found out I was pregnant with my 2nd son Cameron Turner. At 26 weeks my sonograms showed my son Cameron kidneys were large and he had low abdominal fluid. My nightmare started all over again. I was admitted into the hospital a week before Christmas to monitor my son fluids and heart rate. I was genetic tested and it came back my son had ARPKD(Autosomal Recessive Polycystic Kidney Disease) is a rare genetic disorder that is inherit by the parents that carry the PKHD1 gene. ARPKD affects 1 in 20,000 babies born. At 33 weeks I had another sonogram and my son kidneys and stomach gotten larger so at 37 weeks myself and my high risk doctors decided my son Cameron had to be delivered. February 22, 2018 I gave birth to my son Cameron Turner. Cameron was put on a ventilator and rushed to NICU. I was with him for hours. The nurse told me his heart rate was dropping because he was very active so I decided to go to my room on another floor to freshen up while they calm him down. Before I opened the door to my room the tech walked up and told me the Neonatal ICU called and asked for me to come back down. I rushed back down to NICU and the doctor told me my son Cameron was dying, that his heart rate dropped from 148 beats per minute to 48 beats per minute. So they let me hold my son while he was still on the ventilator and after 20 minutes they took him off and he died peacefully at 10:24pm in my arms. I was devastated! When I found out my sons had ARPKD I researched and got involved with the PKD Foundation. Bringing awareness and finding a cure for PKD is very important to me because I don’t want another family to go through what I’m going through. PKD has to end and I’m going to help and make sure it does. I wear this necklace for my sons and others who have been affected by PKD.“ @infant_loss

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