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“My name is Casey & I wear the Purple AWARE Necklace to bring awareness to Fibromyalgia & Lupus, though I also have Hashimoto's, Lupus, EBV, & JHS. Symptoms include chronic fatigue, extreme joint pain, swelling & dislocations (partial & full) on a daily basis, chronic hives, muscle pain & spasms, light sensitivity, nerve pain, chronic pain, insomnia, & brain fog. This year, nothing was working to relieve my chronic pain & worst symptoms, and I was becoming desperate. I was as natural as possible with my treatment (to this day I only take 1 medication), but with the unrelenting pain & state of flare, I was considering immunotherapies & chemo. Thankfully, a friend posted a video of himself in a Cryo Chamber, asked if I would try it, & I've been healing ever since! I used Cryo to get my autoimmune diseases into remission during the next 3 months. I was thrilled but was also experiencing a whole different set of symptoms. Something was still wrong - I had Fibromyalgia. A month or two later when I had dislocated both of my hips, I was diagnosed with JHS. Despite receiving diagnosis after diagnosis, I refused to see it as bad news - just information I needed to figure out how to heal. This whole time, most doctors haven't been helpful. I've had to be my own advocate - fighting for myself & any progress I've made. What I've learned: it's all about mindset & there's never just ONE thing that works when it comes to healing. Today, I use Cryotherapy, Infrared Sauna, Lectin-Free Diet, Vitamin IV Treatments, Myofascial Release, Acupuncture, Chiropractor, CBD, Hydrotherapy, Forearm Crutches, Braces, & Meditation to heal. Though it might not seem like it, this is the healthiest I've ever been! I'm honestly thankful for the chance chronic illness has given me to make beneficial changes to my life. I'm still on my healing journey, but I work every day to achieve balance with my illnesses. I live on my own, work full-time, travel, & just this weekend did a hike in forearm crutches! Yes, living life the way I do is painful, but with my conditions, I'm in pain anyway. So why not make it worth it?! I try to live every moment out loud in the hopes that my story can help someone.” @Cryo_Kween_Seatttle


"Hey my name is Lisa. I’m 35 years old & was diagnosed with Fibromyalgia going on 6 years. I remember that day, walking out of the Dr office telling myself to breath as the tears just kept rolling down my face. After years of not feeling well, hundreds of Dr appts, X-rays, MRI’s, CAT scans, blood infusions & so many medications etc I finally got answers. Not the answers I was looking for but at least I could feel somewhat at ease knowing what was wrong. It’s nothing that they have found a cure for but I can learn to manage the symptoms. I had to quickly remind myself this isn’t me. I won’t let this define me as a person. But instead use it as positives I can & shine some light on invisible illnesses. Let it show me the qualities I didn’t even know I had. Strength, courage & bravery to name a few. I’m only human so of course I have bad days were I think to myself why me or feel useless, helpless, not worthy. But I have the BEST support system behind me to help me, pick me up when I fall, and to reassure me that everything is going to be okay. One day at a time; one foot in front of the other. My wife and my boys have been my rock through this all. Being diagnosed with Fibromyalgia and dealing with all that comes with it has not been easy but with them by my side I know anything is possible." @Its_me_lisa_marie


“I wear purple for fibromyalgia. I was diagnosed after years of chronic migraines and a bout of Lyme disease resulted in pain that never went away. Eventually, I was overly sensitive in all my trigger points, ended up in the ER during the solar eclipse with a horrific neck muscle spasm, and could not shake the ever-worsening brain fog. Even though I have many other health problems (e.g. IBS, TMJ disorder, silent reflux, anxiety, and depression) this is the most controversial one. Too many people, including doctors, still think of it as psychosomatic or a misdiagnosis but studies have proven that fibromyalgia is a real disease! I'm wearing this necklace as a way to remind myself that what I struggle with is real, to start a conversation with others about invisible illnesses, and to feel empowered that I am not alone. We are not alone.” @lytoriathefairy


Fibromyalgia Stories