Heart Conditions and Diseases - @elaina_02_

“Hi, my names Elaina and I was born with a heart defect called, Tetralogy of Fallot. TOF is a very rare defect that is vey life threatening in the beginning and all through life. I was diagnosed with it when I was born. I had my first surgery to fix it at the age of 3 months, and my last surgery to replace my pulmonary valve when I was 10. Tetra means 4, and Fallot is the doctor that found it. It was original called the blue baby syndrome. I have 4 official things wrong with my heart. 1. The right side of my heart is enlarged. 2. My pulmonary valve is too narrow. 3. Ventricular septal defect. 4. Overriding Aorta. Trust me I know it’s a lot to process and understand. Being different doesn’t bother me. I love it so much. Cause to be honest who wants to be like everyone else? I’ll be honest, having TOF has completely changed my life and who I am. It’s been a very hard road and I’ve had lots of breakdowns yelling at God why he made me the way I am, and why I couldn’t just die cause I felt so sick and awful. I know now why I am who I am. I’m here to teach others and love on kids and adults, who have disabilities, defects, or any sort of abnormalities. “My scars tell a story of when life tried to break me, but failed.” I believe in that quote so much and it keeps me going. I hope my story inspires you to spread awareness on this cause and to learn more on how to do that. I can’t thank aware causes enough for there support, and necklaces for all different kinds of things.“ @elaina_02_ 

Back to blog

Leave a comment