IBD (Crohns and Colitis)

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"Hi, I’m @_jenna_ziegler, born and raised in California now living in Tennessee! I proudly wear the purple Awareness necklace to raise awareness about inflammatory bowel disease (IBD). I was diagnosed with ulcerative colitis five years ago, so as I write this message, it’s my five-year diagnosis anniversary! Ulcerative colitis is an invisible illness, because, while I may look healthy on the outside, my intestines are swarmed with chronic inflammation. You can probably guess that this half-decade with ulcerative colitis has been a roller coaster ride. I’ve learned things about life and about myself that I never thought I’d need to know—from how to advocate for myself in the doctor’s office to the perfect position to lay to give myself enemas. I run a blog called The Comical Colon where I share my medical journey in a comical light to encourage others to share their unique health journeys. I truly believe that community forms when we allow ourselves to be vulnerable. I’m so happy to partner with AWARE so I can continue to spread awareness, hope, and sensible chuckles." @_jenna_ziegler

"My name is Harriet and I work in the NHS and we joke there’s no secrets in Operating Theatres. Coming back from sick leave I felt embarrassed having a bowel illness. Which was silly as I’m in a caring profession. My team have been so great too. Last October I felt so unwell, and in November I was diagnosed with a mild form of Crohn’s disease. Ten months later I’m still learning about my body and I’m sure it will be life-long. I tried out the paleo diet for January, and felt wonderful, but it didn’t last long. I have taken the principles and made my own. But I still worry about going out to eat. This photo is from a holiday in New York. Where finding paleo and organic food was great and I felt happy and proud to wear the necklace in the US. Thanks to AWARE causes when wearing my necklace it opens up conversations for invisible illness. People ask me what it is and then the company and look it up for all the causes that then may relate to them. I chose a gold necklace as I always wear silver, a small chance for myself." @paleocrohnsandharriet



“My name is Lucy Jane, I’m a fashion blogger from the UK & you probably can’t tell but 4 weeks ago I had major surgery due to my Ulcerative Colitis. 2 years ago I was diagnosed with the disease and for 2 years it completely ruled my life. My days were filled with constant stomach pains, countless toilet trips, bloating, 10+ tablets, iron deficiencies, infections, so many hospital visits and a whole lot of different medications. I didn’t have my life, Ulcerative Colitis had my life. After becoming worse in Jan 2019, on Saturday 16th Feb I had a sub-total colectomy leaving me without a colon but with an Ileostomy! I call my stoma Sally and think she’s the best thing that’s ever happened to me! Although I still ache, I wake up in no pain, go to bed with no pain and have all control back that I’d lost for 2 years! Purple is my colour to represent Crohn’s and Colitis, they’re awful diseases that aren’t spoken about enough just because they’re to do with poo! I’m going to wear this necklace with pride and speak openly about my disease because the more awareness, the less isolated we feel! These are invisible illness’ but we shouldn’t be made to feel like we should suffer in silence! So I’m Lucy, I poo in a bag and I’m ready to shout about that to the world because this lil bag has given me a new chance at life.” @lucysb_ 

 

“I have Crohns Disease, which is an Irritable Bowel Disease (IBD). I was diagnosed in January 2018, however looking back, it is obvious that I had it all my life, just not to the extent for a proper diagnosis. When first diagnosed I had mixed feelings. 1) Yeah! They know what it is! 2) I was not crazy to feel ill all those years! 3) Em...What is Crohn's exactly?! So the journey started. About 13 trips to the A&E, 4 hospitalizations, and numerous tries in finding the right cocktail of meds later, I am at a stage where I now can function on a daily basis and symptoms are more controlled - never non-existant. I know more about this disease through research I've made and to talking to other patients and well, living with the disease and discovering new things along the way.  However, for a disease that has hit over 30 million world wide, there is still a long way to go! I have decided to do my part and have recently joined the Malta Association of Crohns and Colitis committee (MACC) to hopefully help create a platform of more awareness and support for IBD patients in Malta. Complaining gives one something to do, however it does not solve anything. I don't think of me as 'Poor Thing'. Playing the victim of the hand life dealt me is not my style. I wear this AWARE necklace to help generate awareness about IBD as not all disabilities are visible!” @davlyn19

 

“7 years ago I went out to dinner with some coworkers from my new job. The next morning I woke up with what I thought was food poisoning. It took 6 months, several doctors visits, and a colonoscopy to figure out that I had Crohn's Disease. 2 years ago I decided to take the "natural" route for my healing journey. I tested and tweaked until I was in the best health I'd been in since I got sick. I started Intestinal Fortitude @intestinal4titude to share what had worked for me with anyone else out there who was trying to avoid the pharmaceutical route. I came across Aware Causes and immediately recognized the opportunity to continue to spread awareness for Inflammatory Bowel Disease (IBD), Crohn's Disease, and Ulcerative Colitis. I hope people will wear these PURPLE necklaces with pride, and use them to tell the world that you support people with IBD.” @intestinal4titude 

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IBD (Crohns and Colitis)

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