Myasthenia Gravis Stories - @tired_as_a_mother_blog

“I was diagnosed with Myasthenia Gravis when I was 13 years old. It took nearly a year of testing to figure out my condition. Ultimately, it was found in a blood test. Prior to being diagnosed I played basketball, figure skated, danced and played tennis. Sports were everything to me. I continually found myself on the ground from my legs giving out from under me. It was devastating that my life would be forever changed. As a kid going through this, I often thought “why me?” On top of feeling like my life had changed completely because I could no longer play sports, I felt alone. No one I knew had even heard of Myasthenia. I’m 34 years old now and up until very recently I’d still only met one person with Myasthenia Gravis. It was nearly 20 years ago I’d decided I wanted to share my story somehow. Having this AWARE necklace helps spur conversations about my journey and spread awareness for MG. As of today, it is not a curable disease, meaning I will have it for the rest of my life. My hope is someday there will be a cure. While I’ve been able to manage my MG well over the last decade and learned to see the opportunity in other activities like music, MG most certainly changed the course of my life.” @tired_as_a_mother_blog 

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