Rare Disease Stories
Rare Diseases - @ChronicallyJennKacey
"Hi!! I'm Jenn and I received my A.W.A.R.E. necklace to show my zebra stripes for several chronic illnesses. Six big conditions (EDS, POTS, MCAD, Ichthyosis Vulgaris, Raynauds, Sjogrens) and something...
Rare Diseases - @ChronicallyJennKacey
"Hi!! I'm Jenn and I received my A.W.A.R.E. necklace to show my zebra stripes for several chronic illnesses. Six big conditions (EDS, POTS, MCAD, Ichthyosis Vulgaris, Raynauds, Sjogrens) and something...
Rare Diseases - @nadinesperance
“Hi guys, I'm Nadine and I am wearing the zebra necklace for rare diseases. I have Friedreich's Ataxia which is a neurological disorder that makes me unable to walk normally....
Rare Diseases - @nadinesperance
“Hi guys, I'm Nadine and I am wearing the zebra necklace for rare diseases. I have Friedreich's Ataxia which is a neurological disorder that makes me unable to walk normally....
Rare Diseases - @rockforacure
"You’re never prepared for being the parent of a child with a rare disease. My husband and I thought having twins was going to be our biggest challenge. For 10...
Rare Diseases - @rockforacure
"You’re never prepared for being the parent of a child with a rare disease. My husband and I thought having twins was going to be our biggest challenge. For 10...