EDS (Ehlers-Danlos Syndrome) Stories

EDS (Ehlers-Danlos Syndrome) - @meeds_andmyhead

EDS (Ehlers-Danlos Syndrome) - @meeds_andmyhead

“So I choose the Zebra pin as it represents rare/chronic illness, I really want to raise awareness for my condition ehlers danos syndrome type 3 as it’s been a hard...

2 comments

EDS (Ehlers-Danlos Syndrome) - @meeds_andmyhead

“So I choose the Zebra pin as it represents rare/chronic illness, I really want to raise awareness for my condition ehlers danos syndrome type 3 as it’s been a hard...

2 comments
EDS (Ehlers-Danlos Syndrome) - @syncope_squad

EDS (Ehlers-Danlos Syndrome) - @syncope_squad

“Hello! My name is Nikki and I am 23 years old. I live in New Jersey, and I have Ehlers-Danlos Syndrome (EDS). EDS affects every aspect of my life. I...

EDS (Ehlers-Danlos Syndrome) - @syncope_squad

“Hello! My name is Nikki and I am 23 years old. I live in New Jersey, and I have Ehlers-Danlos Syndrome (EDS). EDS affects every aspect of my life. I...

EDS (Ehlers-Danlos Syndrome) - @ally__strong

EDS (Ehlers-Danlos Syndrome) - @ally__strong

“I’m Ally, a 28 year old disabled human. I have a plethora of physical & mental illnesses with Ehlers-Danlos Syndrome being my main illness. EDS is a connective tissue disease,...

9 comments

EDS (Ehlers-Danlos Syndrome) - @ally__strong

“I’m Ally, a 28 year old disabled human. I have a plethora of physical & mental illnesses with Ehlers-Danlos Syndrome being my main illness. EDS is a connective tissue disease,...

9 comments
EDS (Ehlers-Danlos Syndrome) - @chronicallyrara

EDS (Ehlers-Danlos Syndrome) - @chronicallyrara

“My name is Lindsey and I have Ehlers-Danlos Syndrome, Classic and hyper mobile. Along with it come several other comorbidities that have left me severely disabled. I went from being...

EDS (Ehlers-Danlos Syndrome) - @chronicallyrara

“My name is Lindsey and I have Ehlers-Danlos Syndrome, Classic and hyper mobile. Along with it come several other comorbidities that have left me severely disabled. I went from being...

EDS (Ehlers-Danlos Syndrome) - @living.being.sick

EDS (Ehlers-Danlos Syndrome) - @living.being.sick

“My dad is from bolivia- they don’t have health care like they do here and have certainly never dealt with a condition like ehlers danlos syndrome. So I was the...

7 comments

EDS (Ehlers-Danlos Syndrome) - @living.being.sick

“My dad is from bolivia- they don’t have health care like they do here and have certainly never dealt with a condition like ehlers danlos syndrome. So I was the...

7 comments
EDS (Ehlers-Danlos Syndrome) - @_luceononuro_

EDS (Ehlers-Danlos Syndrome) - @_luceononuro_

“My name is María, i am almost 23 years old and live near the City of a hundred Steeples, alias Montréal. My journey with atypical Ehlers Danlos Syndrome started as...

4 comments

EDS (Ehlers-Danlos Syndrome) - @_luceononuro_

“My name is María, i am almost 23 years old and live near the City of a hundred Steeples, alias Montréal. My journey with atypical Ehlers Danlos Syndrome started as...

4 comments