EDS (Ehlers-Danlos Syndrome) Stories

EDS (Ehlers-Danlos Syndrome) - @welkomindewereldvaneenkneus

EDS (Ehlers-Danlos Syndrome) - @welkomindewerel...

"Hi all! My name is Martine and I’m a Dutch spoonie suffering from Ehlers-Danlos Syndromes, hypermobile type. I was diagnosed eight years ago after searching for a diagnose since I...

2 comments

EDS (Ehlers-Danlos Syndrome) - @welkomindewerel...

"Hi all! My name is Martine and I’m a Dutch spoonie suffering from Ehlers-Danlos Syndromes, hypermobile type. I was diagnosed eight years ago after searching for a diagnose since I...

2 comments
EDS (Ehlers-Danlos Syndrome) - @salty_and_spoonless

EDS (Ehlers-Danlos Syndrome) - @salty_and_spoon...

"I'm Sarah and I have Ehler Danlos Syndrome as well as multiple cormorbidies such as POTS and gastroparesis. They cause things such as chronic pain, dislocations, debilitating fatigue, migraines, autonomic...

16 comments

EDS (Ehlers-Danlos Syndrome) - @salty_and_spoon...

"I'm Sarah and I have Ehler Danlos Syndrome as well as multiple cormorbidies such as POTS and gastroparesis. They cause things such as chronic pain, dislocations, debilitating fatigue, migraines, autonomic...

16 comments
EDS (Ehlers-Danlos Syndrome) - @mrs_clearly

EDS (Ehlers-Danlos Syndrome) - @mrs_clearly

“I’m fine.” At least, that’s the lie I told for 35 years. My diagnoses include: Ehlers-Danlos Syndrome, POTS, Gastroparesis, MCAS, celiac disease, dermatitis herpetiformis, migraines and asthma. Unfortunately I have had 26...

2 comments

EDS (Ehlers-Danlos Syndrome) - @mrs_clearly

“I’m fine.” At least, that’s the lie I told for 35 years. My diagnoses include: Ehlers-Danlos Syndrome, POTS, Gastroparesis, MCAS, celiac disease, dermatitis herpetiformis, migraines and asthma. Unfortunately I have had 26...

2 comments
EDS (Ehlers-Danlos Syndrome) - @chronically.hadley

EDS (Ehlers-Danlos Syndrome) - @chronically.hadley

“Hey everyone! My name is Hadley, I’m from Los Angeles, California, and I turn 18 on April 22. I was a kid who was easily injured, but that didn’t stop...

5 comments

EDS (Ehlers-Danlos Syndrome) - @chronically.hadley

“Hey everyone! My name is Hadley, I’m from Los Angeles, California, and I turn 18 on April 22. I was a kid who was easily injured, but that didn’t stop...

5 comments
EDS (Ehlers-Danlos Syndrome) - @leahrachel.zeb

EDS (Ehlers-Danlos Syndrome) - @leahrachel.zeb

“Hi, I'm Leah! I'm an actress, a philosophy student, a girlfriend, a daughter, a musical theatre performer, a teenager for another few weeks.. and a visually impaired Ehlers Danlos warrior....

7 comments

EDS (Ehlers-Danlos Syndrome) - @leahrachel.zeb

“Hi, I'm Leah! I'm an actress, a philosophy student, a girlfriend, a daughter, a musical theatre performer, a teenager for another few weeks.. and a visually impaired Ehlers Danlos warrior....

7 comments