EDS (Ehlers-Danlos Syndrome) - @chronically.hadley

Posted by Pierson Williams on November 16, 2019

“Hey everyone! My name is Hadley, I’m from Los Angeles, California, and I turn 18 on April 22. I was a kid who was easily injured, but that didn’t stop me from playing the sport I loved. I played volleyball competitively for over six years and my chronic illness story started in 10th grade when I received two concussions. This lead to the discovery of postural orthostatic tachycardia syndrome and ehlers danlos syndrome. After that, my medical list snowballed into mast cell activation disorder, gastroparesis, eosinophilic esophagitis, and food allergies. I choose the zebra necklace because it represents ehlers danlos syndrome and that is the root cause of all my illnesses. I hope to spread awareness and that might help us with more research to find treatments or even a cure.” @chronically.hadley

EDS (Ehlers Danlos Syndrome)

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