“I’m fine.” At least, that’s the lie I told for 35 years. My diagnoses include: Ehlers-Danlos Syndrome, POTS, Gastroparesis, MCAS, celiac disease, dermatitis herpetiformis, migraines and asthma. Unfortunately I have had 26 OR trips, numerous hospitalizations, endure daily infusion treatment, and more pills than I can count. I have had multiple major joints fused, hemorrhaged and nearly died, and handled the prolapse of multiple abdominal organs. My skin rips open and my intestines no longer function. I live in immense daily pain. I am NOT “fine.” I choose to raise awareness for my invisible illness—this is disability. This is the life I’ve been given. My physical body will continue to progressively decline. I no longer claim to be “fine” but instead welcome conversation to encourage others to see what chronic illness actually looks like. I am incredibly blessed, and find something each day to be grateful for. Ehlers-Danios may affect ALL areas of my life, but it will never keep me from LOVING and LIVING my life." @mrs_clearly
2 comments
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