EDS (Ehlers-Danlos Syndrome) - @leahrachel.zeb

Posted by on

“Hi, I'm Leah! I'm an actress, a philosophy student, a girlfriend, a daughter, a musical theatre performer, a teenager for another few weeks.. and a visually impaired Ehlers Danlos warrior. My EDS (currently dx hEDS, but awaiting testing for cEDS & clEDS) causes upwards of 85+ joint dislocations (some partial, most full) everyday, with yet to find an exception. I'm on daily pain relief that most doctors wouldn't dream of putting a 19 year old on - and it just about manages to dull the pain. I lost 90% of my sight over a lunch time at school, and had to learn to use a white stick and a wheelchair within a year of each other. I fit, faint, and can only sustain a primarily liquid diet. My day's consist of lectures, auditions, essay writing, show rehearsals, tech runs, revision, performances, hospital appointments, 19 hour days on studio sets, exam prep, blood pressure checks, 30+ tablets, a hell of a lot of singing.. And most importantly: spending time with my incredible family, wonderful other half, and close friends. For everything that EDS has taken from me, it's given me a career as a wheelchair performer, strength, and a unique perspective on the world and on show business, too. It's given me a fire, a determination that cannot be put out.” @leahrachel.zeb

EDS (Ehlers Danlos Syndrome)

Newer Post →



Leave a comment